November 6 - Thursday Morning

7:00 -8:00

Breakfast

Family Session I: Parent-to-Parent Support

8:00 -8:05

Introduction of Family Session

Scientific speaker: How can families help! Giving support: Networks, services, and resources for CMV families

8:05 -8:15

Family speakers: How CMV parents can share information and experiences with each other

8:15 -8:20

Q&A Discussion

Family Session II: Current CMV Research Initiatives

8:20 -8:50

Scientific speakers:

Clinical trials for treatment of newborns with congenital CMV disease

Clinical trials for prenatal treatment and prevention of congenital CMV infection and disease

CMV Vaccine trials

8:50 -9:00

Family speaker: Family participation in CMV clinical trials

9:00 -9:10

Q&A Discussion

Family Session III: Fundraising for CMV Awareness and Research

9:10 -9:20

Expert speaker: Fundraising 101: Family fundraising options and steps for a successful fundraiser

9:20 -9:40

Family speakers:

Establishing a charitable foundation that supports congenital CMV

Unique fundraising opportunities for CMV Families: How to become involved

9:40 -9:50

Q&A Discussion

Family Session IV: Advocacy for CMV

9:50 -10:00

Expert speaker: Influencing political decisions and policies related to CMV

10:00 -10:10

Family speaker: How parents can raise awareness and educate the public about CMV disease

10:10 -10:20

Q&A Discussion

Family Session V: Raising a Child Born with Congenital CMV

10:20 -10:35

Scientific speaker: Management and Resources for Children with Developmental and Sensory Disabilities

10:35 -10:45

Expert speaker: Advocating for your child's education

10:45 -10:55

Family speaker: Raising and loving a child with congenital CMV disease

10:55 -11:05

Q&A Discussion

11:05 -11:15

BREAK

Plenary III (Combined Scientific and Family Attendees): Awareness and behavioral interventions

11:15 -11:30

Scientific speaker: Behavioral intervention for Congenital CMV

11:30 -12:30

Roundtable presentation and discussion on congenital CMV awareness:

What do research, theory, and practice reveal about reaching women, nurse-midwives, obstetrician/gynecologists, and child care providers with a CMV prevention message?

How can congenital CMV researchers build collaborations with these constituencies?

November 6 - Thursday Afternoon

Plenary IV (Combined Scientific and Family Attendees): Advocacy

12:30 -2:00

Lunch and Forum on Advocacy

1:00 -2:00

Panel presentations and audience Q&A:
Lessons learned from folic acid and applications to congenital CMV

Family Forum: Ask the Experts and Meet the Families!

2:00 -5:00

Open Discussion Forum

This forum is an opportunity to interact with CMV experts and other CMV families in an informal setting

November 6 - Thursday Evening

5:00 -10:00

Georgia Aquarium Event: Aquarium Viewing and Gala Banquet